Our team will evaluate the impact of the collaborative care model to address substance use co-occurring with mental health disorders that particularly impact young Black and Latino men who have sex with men.
Partnership: Yuan He, MD, from CHOP’S Division of General Pediatrics will partner with April Lee from Philly Voice for Change, alongside collaborators from Maternity Care Coalition, the Philadelphia Department of Public Health, Unity Recovery, Gaudenzia, Caring Together at Drexel, and Jefferson’s MATER program
Project description: This team plans to conduct a qualitative study to better understand how access to short-term childcare impacts recovery and treatment engagement for parents of color with substance abuse disorders.
Partnership: Jonathan Strysko, MD, MSc, IBCLC, from CHOP’s Division of General Pediatrics will partner with Kaone Ranyere, SACLC, from the Botswana-University of Pennsylvania Partnership and Princess Marina Hospital in Gaborone, Botswana
Project Description: This team plans to pilot Botswana’s first donor human milk program using a low-cost, on-site pasteurization approach to improve access to safe donor milk for hospitalized infants. This award is sponsored in partnership with the CHOP Global Health Center and the Melissa Ketunuti Endowment.
Partnership: Samara Jinks-Chang, MD, MPH, MS, from CHOP’s Division of Adolescent Medicine will partner with Kendra McDow, MD, MPH, from the School District of Philadelphia, alongside collaborators from Penn’s Center for Addiction Medicine and Policy, the Free Library of Philadelphia, and Stanford REACH Lab
Project Description: The team plans to develop and evaluate a youth-centered naloxone education initiative for middle and high school students across Philadelphia.
Partnership: Jeremy Jones, MD, from CHOP’s Division of Pediatric Emergency Medicine and the ExPERT program will partner with Monica Costello, MSN, RN, CEN, from Holy Redeemer Hospital; Megan Stobart-Gallagher, DO, from Einstein Montgomery Hospital; Jill Matusiak, MSN, RN, CEN, and Jason Burgess, MSN, RNC-NIC, from Virtua Mount Holly Hospital; Lisa Winchester, PhD, RN, CEN, NPD-BC, and Alfred Sacchetti, MD, from Virtua Our Lady of Lourdes Hospital; and Sherri Campbell, MSN, RN, CEN, TCRN, from Chester County Hospital
Project Description: This team plans to partner with community emergency departments across the Philadelphia region to better understand and improve pediatric airway readiness in non-children’s hospitals, where most children receive emergency care.
Partnership: Priyanka Joshi, MD, MSHP, and Polina Krass, MD, MSHP, from CHOP’s Division of Emergency Medicine and PolicyLab will partner with Leigh Wilson-Hall, MSW, and Aaron Truchil, MSSP, from the Camden Coalition
Project Description: This team plans to develop a community-academic partnership to explore and adapt mental health care navigation models for youth in New Jersey.
Partnership: Jennifer Whittaker from PolicyLab and CHOP’s Qualitative Research Core will partner with Sarah Rafacz from Spotlight PA
Project Description: The team plans to develop and test a civic-science media partnership focused on documenting how rural Pennsylvania families navigate changes to health insurance and social safety net policies. This award is sponsored in partnership with the Health Equity Research Methods (HERMeS) Initiative, which aims to advance health equity research and translation across CHOP and CHOP Research Institute.
Partnership: Elizabeth Sanseau, MD, and Chermiqua Tsosie from CHOP’s Indigenous Health Unit will partner with Cornelia Dimalanta from the Native American House Alliance (NAHA)
Project description: The team plans to establish an Indigenous Community Research Advisory Board to guide pediatric health care research focused on American Indian, Alaska Native, and Native Hawaiian children and families in Pennsylvania. This award is sponsored in partnership with CHOP's Office of Community Impact (OCI). Through strategic partnerships with community organizations, schools, government agencies and families, OCI develops and supports programs that promote health equity, improve access to resources, and strengthen communities.
Partnership: Sarah Maclean, MD, CHOP pediatrician will partner with Unangoni Bulawayo, MD at Nyangabgwe Hospital, Francistown, Botswana.
Project Description: This project focuses on understanding the factors associated with neonatal mortality at a hospital in Botswana. This award is PolicyLab's first CPIR award to a CHOP physician and an international partner.
Partnership: Kate Wallis, MD, MPH, from PolicyLab and CHOP’s Department of Developmental and Behavioral Pediatrics will partner with Yovana Bustamante from Posibilidades Infinitas
Project description: The team will conduct a community needs assessment and then action the development of accessible, Spanish-language educational materials. This award is sponsored in partnership with CHOP’s Clinical and Translational Research Award (CTSA) program. The mission of CHOP's CTSA is to provide resources, environment, operations, and training to support and promote high-quality clinical and translational research by qualified investigators.
Partnership: Hillary Kapa, MPH, from CHOP’s Center for Injury Research & Prevention and Stephanie Garcia, MPH, from PolicyLab and CHOP’s Center for Injury Research & Prevention will partner with Matthew Kerr and Christopher Thornton from Beyond the Bars
Project description: The team plans to conduct an evaluation of an established youth leadership development program, Beyond the Bars Student Teacher Program, which serves as a student-led music enrichment program for middle and high school students aimed to interrupt cycles of violence and combat disinvestment in Philadelphia. This award is sponsored in partnership with the Health Equity Research Methods (HERMes) Initiative, which aims to advance health equity research and translation across CHOP and CHOP Research Institute.
Partnership: Abigail Wilpers, PhD, from PolicyLab and CHOP’s Neonatology Health Services Research Lab will partner with Simran Singh Jain from SisterSong, The Women of Color Reproductive Justice Collective
Project description: The team will use focus groups to understand health care experiences of individuals of color who have experienced a pregnancy complicated by a severe fetal condition and will disseminate findings in a multimedia exhibition to guide reflection and action. This award is sponsored by the Health Equity Research Methods (HERMes) Initiative, which aims to advance health equity research and translation across CHOP and CHOP Research Institute.
Partnership: Yuan He, MD, MPH, MSHP, from PolicyLab and CHOP’s Department of Pediatrics will partner with Colette Green, MSS, from Maternity Care Coalition
Project description: The team will work to identify facilitators and barriers to service and resource linkages for families impacted by substance use disorder (SUD) in Philadelphia through the development of a community advisory board of stakeholders who serve birthing parent-infant dyads impacted by perinatal SUD. This award is sponsored by the CHOP Cancer Center Diversity Committee.
Partnership: Jillian Lucas Baker, DrPH, EdM, from CHOP’s Craig-Dalsimer Division of Adolescent Medicine’s Center for Parent and Teen Communication, and Joel Austin from Daddy University Inc.
Project description: The team plans to examine the barriers and facilitators for Black fathers’ communication with their teens (ages 12-17) about coping strategies for discrimination, racism, and mental health needs via focus groups and survey administration. They will then use these findings to develop and test the effectiveness of a parenting intervention for Black fathers in Philadelphia.
Partnership: Marné Castillo, PhD, MEd, and Bevin Gwiazdowski, MSW, PolicyLab members from CHOP’s Adolescent Initiative and the Craig-Dalsimer Division of Adolescent Medicine, and Sydney Rolle-Stern, MPH, from the Lutheran Settlement House
Project description: The team seeks to address interpersonal violence among LGBTQI adolescents and young adults through the application of the ADAPT framework to modify and test the evidence-based intervention, Students Talking About Relationships, using implementation and qualitative research methods. This award is sponsored in partnership with the CHOP Clinical and Translational Research Award (CTSA) program. The mission of the CHOP CTSA is to provide resources, environment, operations, and training to support and promote high-quality clinical and translational research.
Partnership: Daniela Brissett, MD, and Nadia Dowshen, MD, MSHP, PolicyLab members from CHOP’s Craig-Dalsimer Division of Adolescent Medicine, and Tawanna Jones, EdD, from we R.E.I.G.N: Rooting, Empowering, and Inspiring a Girl’s Nation
Project description: The team aims to understand the impact of adultification on the medical and mental health outcomes of adolescents in an urban setting. More specifically, they will gather youth and their families' perspectives utilizing semi-structured qualitative interviews and innovative qualitative arts-based methods, such as photo-elicitation exercises, to identify the current experiences and potential solutions.
Partnership: Diana Montoya-Williams, MD, MSHP, PolicyLab member from CHOP’s Division of Neonatology, and Jenné Johns, MPH, from Once Upon a Preemie, Inc.
Project description: The team aims to form a community- and family-engaged, interdisciplinary team of ‘NICU Equity Champions’ who will collaboratively build a multi-institutional research agenda focused on mitigating the impact of implicit bias and racism in the CHOP and Hospital of the University of Pennsylvania NICUs.
Partnership: Rachel Myers, PhD, MS, from the Center for Injury Research and Prevention (CIRP) at CHOP and the Center for Violence Prevention (CVP) at CHOP, and Ronna Kassel from Christian Street YMCA
Project description: The team will support, implement, sustain, and evaluate the impact of trauma-informed approaches within 16 branches of the Greater Philadelphia YMCA. Overall, this project will specifically address how to create competence and confidence among program staff to deliver community-based programming in trauma-informed ways.
Partnership: Tara Dechert, MS, from PolicyLab, and Shukriyyah Mitchell, BSN, RN, from the National Nurse-Led Care Consortium
Project description: The team will build a parent and family advisory council that would ensure the community of home-visited clients’ voices are incorporated in all implementation efforts including recruitment and outreach efforts, and research and quality improvement. From this work, their goal is to develop pathways that can be replicated across systems and organizations to allow clients and the home visiting community to lead and partake in future research and decision-making processes.
Partnership: Daniela Brissett, MD, and Nadia Dowshen, MD, MSHP, PolicyLab members from the Craig Dalsimer Division of Adolescent Medicine at CHOP, and Tawanna Jones, EdD, from we R.E.I.G.N.: Rooting, Empowering, and Inspiring a Girl’s Nation
Project description: The team will explore, through personal narratives, the lived experiences of adolescent youth who identify as Black and female aged 13-25. They hope this project will create a better understanding of how Black girls respond to institutional stereotypes but also to examine existing resilience skills used in their everyday lives.
Partnership: Shelby Davies, MD, PolicyLab member from the Craig-Dalsimer Division of Adolescent Medicine at CHOP, and Lynette Medley, MEd, from No More Secrets Mind Body Spirit (MBS) Inc. and the SPOT Period
Project description: The team will create a research partnership infrastructure between CHOP’s Division of Adolescent Medicine at CHOP, The Food Pharmacy at CHOP, and No More Secrets MBS Inc. and The SPOT Period. This first-of-its-kind partnership will aim to better understand the relationship between food insecurity and period poverty as a means for developing a menstrual product distribution program within a food pharmacy, which is a food bank and education center aiming to reduce hunger and improve health by making nutritious foods readily available to patients and their families.
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Carleton University. Community Based Research Toolkit. https://carleton.ca/cspsc/research-toolkit/
Andrews JO., Newman SD, Cox MJ, Meadows O. Are we ready? A toolkit for academic-community partnerships in preparation for community-based participatory research. Charleston: Medical University of South Carolina. 2011.
Northwestern University Feinberg School of Medicine. Alliance for Research in Chicagoland Communities (ARCC). Community-Engaged Research Funding & Grantwriting Tips and Strategies. https://www.feinberg.northwestern.edu/sites/cch/get-support/arcc/index.html
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Jenkins C, Fagan HB, Passarella J, Fournakis N, Burshell D. Training academic and community investigator teams for community-engaged research: program development, implementation, evaluation and replication. Progress in Community Health Partnerships. 2020;14(2):229-242. doi: 10.1353/cpr.2020.0019
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Data for Democracy: Community Partnerships Organization Chart
Practicing Pikyav: Policy for Collaborative Projects and Research Initiatives with the Karuk Tribe
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Payán DD, Zawadzki MJ, Song AV. Advancing community-engaged research to promote health equity: considerations to improve the field. Perspectives in Public Health. 2022;142(3):139-141. doi: 10.1177/17579139211054118
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At PolicyLab, we seek to break out of the traditional academic research model to actively engage with community, advocacy, and policy partners and stakeholders on pressing issues faced by families locally, and across the state and country.
PolicyLab is committed to advancing community-engaged research; we are working towards a goal of involvement of youth, families, community organizations and public agencies as partners in research.