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OBJECTIVE: The goal was to compare how parents and clinicians understand shared decision-making (SDM) in attention-deficit/hyperactivity disorder (ADHD), a prototype for SDM in pediatrics. METHODS: We conducted semi-structured interviews with 60 parents of children 6 to 12 years of…
BACKGROUND: How parents of children with life threatening conditions draw upon religion, spirituality, or life philosophy is not empirically well described. METHODS: Participants were parents of children who had enrolled in a prospective cohort study on parental decision-making for…
OBJECTIVES: To determine whether a cardiac diagnosis is a predictor of neurodevelopmental outcomes after infant cardiac surgery. METHODS: Infants with ventricular septal defect (VSD), tetralogy of Fallot (TOF), transposition of the great arteries (TGA), and hypoplastic left heart…
BACKGROUND: The purpose of this study was to assess deep hypothermic circulatory arrest (DHCA) as a modifier of neurodevelopmental (ND) outcomes in preschool children after cardiac surgery in infancy for repair of congenital heart defects (CHD). METHODS: This is a planned analysis of…
This report provides a synthesis of the evidence regarding the effect of recession on child well-being. Since 2007, the United States has suffered its most serious economic contraction since the Great Depression. While experts debate whether it is a “depression” or a “recession” - and…
On one end of the spectrum of decision-making in medicine is paternalism, in which the clinician formulates and communicates the treatment plan to the family. At the other end is informed choice, in which the family decides after gathering information from the clinician or other…
PURPOSE: The purpose of the study was to evaluate the neurodevelopmental outcome in infants with congenital diaphragmatic hernia (CDH). METHODS: Between June 2004 and September 2007, 41 CDH survivors were prospectively enrolled in an interdisciplinary follow-up program…
OBJECTIVE: To evaluate in a national database the association of race and socioeconomic status with radiographic evaluation and subsequent diagnosis of child abuse after traumatic brain injury (TBI) in infants. METHODS: We conducted a retrospective study of infants with non–motor…
OBJECTIVES: To identify patterns of shared decision-making (SDM) among a nationally representative sample of US children with attention-deficit/hyperactivity disorder (ADHD) or asthma and determine if demographics, health status, or access to care are associated with SDM. PATIENTS…
Objective: To compare and contrast notions of ADHD among pediatricians and parents of affected children to understand the perspectives they bring to shared decision making (SDM). Methods: In this freelisting study, 60 parents of children with ADHD and 30 primary care…